Welcome to GGG, where we talk casual games, books, movies, recipes, indie games, and MORE!


5 posters

    Our Special Needs Children -- Battling the School System

    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Our Special Needs Children -- Battling the School System

    Post by genkicoll Sun Aug 18, 2013 8:39 pm

    from http://dfw.cbslocal.com/2013/08/16/family-of-child-with-autism-battling-school-over-gps-device/
    <--Follow link to view the video

    August 16, 2013
    ARLINGTON (CBS 11 NEWS) - An Arlington family says the school district will not allow a six-year-old with autism to take a life-saving device to school.  The battle began back in February.  The CBS 11 I-Team got involved this week.  The little girl heads back to school in one week.  A national autism organization and a local lawmaker are also involved.

    Coral loves to paint, play, and learn like most six-year-olds.   She also likes to wander like most children with autism.

    “When Coral is outside she runs,” says her grandmother Carol Christian.

    Coral rode the bus to Pope Elementary last year and her grandmother worried that she would wander from school.  So, the family bought her a GPS tracking device.

    “The tracker simply tracks where Coral is at every five minutes throughout the day.”

    Christian says the tracker alerts the family if Coral goes outside of a specific zone.  The remote stayed in coral’s backpack until March.

    “All of a sudden we get an email at home telling us they had removed the GPS tracker from her backpack…that it was against district policy,” explained Christian.

    For months, Coral’s family fought the district.

    “They know it’s not against the law and now they are ignoring us,” said Christian.

    Christian turned to the National Autism Association for support.  A spokesperson told CBS 11 this is “unacceptable.” “Wandering is very common…with autism. This is the first time we’ve heard of a school district…denying access to a potentially life-saving device.”  The association says since April, 14 children with autism have died following a wandering accident.

    Christian: “Kids get away from schools all the time.”

    CBS 11’s Ginger Allen: “You believe this is the difference to life or death in your granddaughter?”

    Christian: “Yes I do.”

    Christian even turned to Senator Wendy Davis, who also reached out the Arlington school district.  But still no resolution.

    CBS 11 visited Arlington ISD and was told “the device is not being allowed because of that remote listening ability.”   The GPS tracker allows an outside user to push a button and unknowingly listen to the holder of the remote.  Communications Director Leslie Johnston says that is against school policy because that means outsiders could be recording what is happening inside the classroom.  Guidelines say you need a teacher’s permission to record.  The district does encourage other technology, including iPhones, computers and iPads, which it firmly believes is different.

    “The phones used under BYOT (Bring Your Own Technology) are being used with a teacher permission and teacher supervision, so you know what is being recorded if that is being allowed by the teacher.” said Johnston.

    CBS 11’s Ginger Allen: “Right now anyone could be recording us on a iPhone and you wouldn’t know it?”

    Johnston: “I should know it and the teacher should know what is going on.”

    The district says it cannot risk the privacy concerns of other students.  They say they are now working with district attorneys and the family to try to find another solution or tracking device.

    Coral’s family says they still waiting to hear from the district.




    Update:  The school district has offered to provide Coral with a different tracking device without the remote listening/recording feature.  But Coral’s family is not satisfied with that device because it does not have the same features as the device they have.  They plan to send Coral to school on Monday with the original device.


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj
    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by genkicoll Sun Aug 18, 2013 8:48 pm

    A member here passed this article here to me, and I'll let her come forward if she wishes to make herself known Offering

    I have been blessed to live in a city where there has been very little need to fight with the school system.  They have been more than accommodating, for the most part.  I can identify with the desire to have a tracking device.  My youngest, now 16, is non-verbal.  Her elementary school AND middle school each lost her once.  They didn't listen to us when we told them she was a runner!  By the time she hit high school, they listened.  *shudder*  We can afford a tracking device... at this point we are still trying to find a way to afford an iPad for her, hoping and praying that the facilitated communication program(s) available will finally help her find her "voice".


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj
    avatar
    Guest
    Guest


    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Guest Sun Aug 18, 2013 9:48 pm

    A young autistic girl (I think 12) wandered onto the highway (an Interstate highway) in my area, after dark recently. The police were not prepared to handle it; they ended up using a Taser on her when she wouldn't respond to their orders! I'm glad they found her and got her home safe, but it wouldn't hurt if they were better trained.


    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Sun Aug 18, 2013 10:26 pm

    Genki, thank you for posting this.

    Coral is my granddaughter.  She is artistic, funny, and has the energy of six puppies.  She has 'escaped' more than once.  The tracker the school wants to provide does not have many of the functions she needs such as an ability to 'set boundaries'.   The GPS she currently has only has the ability to 'listen' for 15 minutes per month!  Please, if you know anyone who has an 'at risk' child (aren't most of them at risk at some point) please repost this on FB or some other social media. 

    BTW, Genki, Coral has an iPad which she loves.  Interestingly enough the school district will allow her to bring that but they warn that they cannot be responsible for its loss or safety (I am not surprised by that since they don't seem to care for their students' safety). 

    Twin, it makes me cringe to think of any child being Tasered, but a child that can't speak?  This is...well, unspeakable.
    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Mon Aug 19, 2013 4:12 pm

    Just a quick update here - AmberAlert Company (I haven't checked who they are yet, but they seem to be the co that developed the Amber Alert tech) has offered to try and rewire Coral's gps so that parameters can still be set & she can still call out, but nobody can 'listen in'.  They saw the national report on Coral.  We are so grateful for their assistance.  Coral's mom is still waiting to hear from the school/district.   (she is probably turning blue waiting Yeah right )
    Thank you everyone for your interest.  Offering 

    (What I mean by parameters - when Coral gets to school her parents draw a line on the map around the school & if she crosses that line their unit beeps.  They also use it at home or anywhere else she is left for even a moment - a Godsend at night because she has managed to get out the window more than once & forget about pet doors.)
    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by genkicoll Mon Aug 19, 2013 6:20 pm

    Oh, I sure hope they go for it!  Fingers crossed!


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj
    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Mon Aug 19, 2013 6:50 pm

    Genki, thank you and a big hug for helping get our story out there.  AA heard about it because it of the internet media.
    Offering Half Flower Offering
    Sable
    Sable


    Posts : 145
    Join date : 2012-01-01
    Location : Plymouth, MA

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Sable Tue Aug 20, 2013 8:11 am

    Just, I hope your GD does get the Amber Alert GPS, and can bring it to school. How short-sighted of the school.

    I can't believe how we treat those with autism, and the lack of support shown, such as the lack of training for the police, and the provinciality of our schools.

    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Tue Aug 20, 2013 4:23 pm

    I've been out all day, but I just got a message from Coral's Mother - Jen by name.  She says that Coral will be attending school on Monday WITH her gps.  I don't have any other details right now.  But, Jen asked me to give everyone here her love.  She said "we couldn't have survived this without all of the support we received from hundred of people we didn't know before."  I say amen to that!  I am truly humbled by everyone's interest and support.
    Half Flower  Offering Half Flower Offering Half Flower
    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by genkicoll Tue Aug 20, 2013 4:36 pm

    I'm so pleased for Coral and your family!  Congratulations! Happy bounce


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj
    RenaissanceMom
    RenaissanceMom


    Posts : 785
    Join date : 2013-01-05
    Age : 60
    Location : NYC

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by RenaissanceMom Tue Aug 20, 2013 11:50 pm

    Congratulations on your victory, and so sorry you even had to go through this to begin with. Good grief, the safety of our children is the most important thing!
    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Thu Aug 22, 2013 5:59 pm

    Thank you, Ren (may I call you that).  I'm sorry I missed your post yesterday.Half Flower 

    Coral's mom & dad are meeting with the new teacher tonight.  I hope that goes well.  Coral loves school & has always loved her teachers, so we are hoping that the School Board dust has settled & everyone can have a good year.
    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Mon Aug 26, 2013 7:54 pm

    Hi everyone, I just want to post a quick update to Coral's story.  She went to school today with her newly refurbished GPS.  She seemed to have a great day, but a bit tired.

    Our local CBS channel aired an update tonight & I'll post a copy as soon as they post it.

    Amber Alert reprogrammed her GPS so that it made everyone happy.  I can't express how grateful I am for everyone's interest, because AA wouldn't have ever heard the story if it hadn't be for all the postings.  Thank you so much for your interest in Coral, and for making me feel so welcome. Offering 

    To Genki, Thank you so much for posting the original story and for creating Game Gab.  You are truly amazing.  Offering


    Last edited by Justgaming on Mon Aug 26, 2013 7:55 pm; edited 1 time in total (Reason for editing : spelling)
    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by genkicoll Mon Aug 26, 2013 8:41 pm

    I'm SO happy to hear that you found a happy ending for Coral!

    I saw THIS article on allergy tattoos, and had a wonderful idea...!  Custom temporary tattoos for my non-verbal autistic!  Something simple, just saying something like:

    My name is (NAME)
    I am autistic.  I do not
    speak.  If you find me
    alone, please call
    (xxx) xxx-xxxx

    Very simple, clearly stating how to get a hold of us.  She won't tolerate a bracelet or necklace, so I was thinking a temp tattoo on her back right below her neck would be great!

    Then I went to a few sites that offer the customizable temps, and once I got all the info in, plus the quantity, it was running over $200!! OH!  *faints*  NO can do!  Sweat drop  Does anyone know of a way to make your own temp tattoos?  There has to be a safe, easy, cost-effective, and non-invasive way to keep her safe, should she get away from those of us who know her!

    We do have a customized shirt that says she's autistic and to call our home phone number, but I can't put the same shirt on her every day!

    Suggestions? Stars


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj
    Justgaming
    Justgaming


    Posts : 29
    Join date : 2013-08-18

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Justgaming Mon Aug 26, 2013 9:35 pm

    Genki, what a great idea, but what a crazy cost.  Didn't we used to get temp tattoos in crackerjack boxes - just ink & a little plastic paper?  Maybe you can contact Autism Speaks or some other group & run this by them.  I would think there would be a demand & maybe a group rate would get the cost down.  Jen made some colorful quilt squares in the shape of the Autism puzzle & put Coral's info on that with marker.  I think she then used iron-on backing & adhered them to Coral's tee shirts.  Coral didn't object to that.
    avatar
    oregonpandora


    Posts : 44
    Join date : 2011-12-29

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by oregonpandora Tue Aug 27, 2013 12:28 am

    Couldn't you just have some stickers made up saying that and stick one on the back of her shirt daily? Kind of like the address stickers? Or for a more permanent solution, the iron on name tags which could be ironed on the outside of her clothing. Both of those have a limit to character #'s but maybe you could come up with something.
    genkicoll
    genkicoll


    Posts : 8347
    Join date : 2011-12-29
    Age : 48
    Location : Pacific Northwest

    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by genkicoll Tue Aug 27, 2013 12:47 am

    Hmmm... Hmm... It bears further thought, that's for sure!  Thanks for the ideas! Offering


    _________________
    Never be a prisoner of your past.
    It was just a lesson, not a life sentence.

    Our Special Needs Children -- Battling the School System  O9fj

    Sponsored content


    Our Special Needs Children -- Battling the School System  Empty Re: Our Special Needs Children -- Battling the School System

    Post by Sponsored content


      Current date/time is Wed Dec 01, 2021 3:46 pm